Rarediseaseshub.com is the website platform of Translational Science of Rare Diseases owned by IOS Press, registered at Nieuwe Hemweg 6B, 1013 BG Amsterdam, The Netherlands.
Guarding your privacy is very important to us. In this Privacy Policy you can learn which data IOS Press collects via this site and how it is used. It is our goal to provide you with a useful, hassle-free experience while using this website, which requires a certain amount of data collection. If you do not agree with the policies set forth in this Privacy Policy, we recommend that you do not visit the IOS Press Translational Science of Rare Diseases website.
If you are simply browsing our site without signing in or being recognized by IP address, we will only keep anonymized log data about usage of our site (see 'Cookies' below).
Which details are collected?
- Contact details that you have provided to us, including demographics
- Information on usage of (parts) of our website, including number of downloads
- Information about transactions made
- Information on alerts that you have installed
- Any other information that you have provided to us in order to be able to help you use our website to meet your needs as well as possible
How IOS Press uses the data collected
We may use the data collected through our site to:
- Establish and verify the identity of our users
- Personalize the site for you
- Enable you to access and use our site
- Fine-tune our services provided to you
- Handle financial transactions smoothly and accurately
- Collect payments from you
- Improve our products and services offered on the IOS Press Rarediseaseshub.com website
In the event that we share the data gathered with agents working on our behalf, these agents must assure us that they use the data in a discrete manner. They may not distribute the collected data further and are required to comply with our Privacy Policy and Terms and Conditions.
Your data will never be sold to third parties.
Cookies
We may place cookies and or other tracking devices in the user’s browser files. Cookies are used to track user behavior. Based on the collected data, we can improve our products and services.
Cookies can be rejected. If this is done, portions of the IOS Press Translational Science of Rare Diseases website may not be properly usable.
What cookies does IOS Press Translational Science of Rare Diseases use
The cookies on our website are categorised according to their use (functional cookies, performance cookies, advertising cookies).
Please check the table below to see the details about all cookies we use:
| Cookie | Owner | Description | Duration | Type | Source | first / Third party |
|---|---|---|---|---|---|---|
| OTZ | Google Analytics | “OTZ” is a cookie used by Google Analytics that provides an aggregate analysis of Website visitors. | 1 month | Analytics | GTM | Third party |
| CONSENT | Stores visitors’ cookie choices. | 13 months | Marketing | Embedded video's | Third party | |
| __Secure-ENID | Used to remember your preferences and other information, such as your preferred language, how many results you prefer to have shown on a search results page (for example, 10 or 20), and whether you want to have Google’s SafeSearch filter turned on. | 13 Months | Functional | Source code | Third party | |
| SOCS | Stores visitors’ cookie choices. | 13 months | Marketing | Embedded video's | Third party | |
| DV | This cookie is installed by Google Analytics. The cookie is used to calculate visitor, session, campaign data and keep track of site usage for the site's analytics report. The cookies store information anonymously and assign a randomly generated number to identify unique visitors. | 10 minutes | Analytics | GTM | Third party | |
| AEC | Cookies used for securily authenticating users, prevent fraud, and protect users as they interact with a service. | 6 months | Functional | GTM | Third party | |
| cookie_consent | Website | This cookie is set when a visitor agrees to the cookie terms. This is used to not show the banner again after the visitor has consented. | 13 months | Necessary | Source code | First party |
| _GRECAPTCHA | Used by Google to differentiate bots from humans. | 6 months | Functional | Source code | Third party | |
| SSESS* | Website | This cookie is used to keep users logged in on the website. | 3 weeks | Functional | Source code | First party |
| _ga_* | Google Analytics | This cookie is installed by Google Analytics. The cookie is used to calculate visitor, session, campaign data and keep track of site usage for the site's analytics report. The cookies store information anonymously and assign a randomly generated number to identify unique visitors. | 13 months | Analytics | GTM | First party |
Secure Use of the IOS Press Translational Science of Rare Diseases website
In cooperation with Dropsolid, the hosting partner and webmaster of this website, we will do everything in our power to guard your personal details and usage behavior data. Collected data will be stored on secure servers and once you’re recognized by IP or logged in through Username and Password, you will be in a safe, encrypted area so no one can take advantage of the details you have entered.
Links to Other Website
Through this website you may be redirected or find links to other websites which are not under the control of IOS Press. We have no control over the nature, content and availability of those sites, nor are we responsible for their Privacy Policy. We encourage you to be aware of the privacy policies of other parties to which we link in case they collect any personal data from you.
Emails
We will only send emails to registered users of the Translational Science of Rare Diseases website who opted in at registration to be kept informed about Translational Science of Rare Diseases or who signed up to receive news. Users can manage their preferences at any time.
Advertisements
Third-party advertising may appear on our website. Usage metrics may be shared with the advertisers, but personal data will never be disclosed.
Changes
IOS Press reserves the right to revise this Privacy Policy at any time as we see fit. If this occurs, we will include an announcement on the Translational Science of Rare Diseases website to notify users of the changes.
IOS Press
Nieuwe Hemweg 6B
1013BG Amsterdam
Tel.: +31 20 688 33 55
Fax: +31 20 687 00 39
Email: info@iospress.nl
Version: September 2018